Rare Rod

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People who have had scoliosis surgery before?

Does surgery hurt? I mean,do you feel anything during or after the surgery? How long will the rod be and doesn't it hurt really bad due to the scar and how do you go for a shower in this case after the surgery? And what if the screws in the rod breaks and you'll have to go for surgery again,isn't it a hassle and extra pain? How do you live with it,with a rod in your body isn't it unbearable?

sorry for the long chain of queries

Long, but hopefully helpful...

I had surgery shortly before I turned 14 (1985). My top curve was fused using stainless steel Harrington rods and bone chips from my hip. How long your rod will be depends on how much of your spine will be fused.

You will be asleep during surgery. After surgery, my pain was well controlled. Really the only time it hurt was one time I was half-asleep and tried to sit up suddenly.

I was back up and moving around within a week of surgery without any meds and doing whatever I wanted. Today, they'd like you to begin walking the day of surgery, no more than three days later. You're usually home in 4-6 days. My only restriction was to not lift anything over 10 pounds for 6 mo.

Post-op showering/bathing depending on your surgeon's closing technique, but usually...Your incision needs to be dry for a week. You can cover the incision with plastic wrap.

I have no problem wearing backless things. I think I have a great back scar. The hip scar, not so pretty. But everyone, EVERYONE, has problem areas on their body. I'm an RN, I've seen thousands of naked bodies, no one is perfect. Here are some other famous people who share scoliosis with us: http://www.scoliosis-world.com/famous_pe...

Is breaking a hassle...probably yes, but extremely rare. Rods are either titanium or stainless steel. If you need the surgery and don't get it, your curve will worsen. That could lead to problems with your heart and breathing. Plus surgery when you're older is harder (I'm guessing you're a adolescent). Putting off necessary surgry will be a bigger hassle later.

How do I live with it...just fine. Most patients with scoliosis can live full, productive, and normal lives. I'm as normally functioning as anyone. Having surgery in summer, I never got off schedule with school. Graduated college at 20 and have been an OR nurse for 16 years, one of the most physically demanding areas of nursing (lots of lifting and lots of standing in one place for long periods). I've had 2 children without difficulty (didn't even use an epidural). I love to travel (I don't set off metal detectors), yoga (though the fusion prevents some positions), and SCUBA dive. I can pretty much do anything I want...but don't tell my husband I use the scoliosis to get out of vacuuming :) My bottom curve aches now and then, I'm supposed to take 1-2 Alleve at bed time, but us nurses are awful patients, so I don't do it regularly.

Are you being treated at a Shriner's Hospital/Clinic? Absolutely the best place for scoliosis patients under 21! If you are, ask the docs/nurses if they can arrange for you to visit/talk with other patients or people who will be involved in your care. Other places may do this too, but I think Shriner's goes above and beyond for their kids.

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